Disabled are the hidden victims of South Sudan’s long war

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Eleven-year-old Nyamet Steven, who was born with cerebral palsy, walks with a walker at Mahad camp for internally displaced people (IDP) in Juba on April 17, 2018. (AFP / Stefanie Glinski)
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Nyamet Steven, who was born with cerebral palsy sits on a wheelchair as she is helped by her mother Nyayom Steven who has a total of seven children at Mahad camp for internally displaced people (IDP) in Juba on April 17, 2018. (AFP / Stefanie Glinski
Updated 31 May 2018
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Disabled are the hidden victims of South Sudan’s long war

  • According to the disability charity Light for the World, around a quarter of a million of South Sudan's 12.23 population are disabled.
  • While South Sudan in 2015 passed a pro-disabled law only three percent of the national budget goes on health care and the disabled are more often shunned than supported.

JUBA, South Sudan:  There is no shortage of victims in South Sudan’s civil war. But few suffer more than the handicapped.
Nyamet was seven years old when soldiers attacked her town.
Most of the population had hurriedly left, abandoning the elderly, blind and disabled — like Nyamet, afflicted by cerebral palsy — to the mercy of the armed men.
They showed none.
“They killed them,” said Nyamet’s mother, who had remained behind with her daughter. “That’s when we started running,” she added, recalling how she fled with the child in her arms.
Four years later, the family lives in a squalid, congested camp for over 7,000 of South Sudan’s millions of uprooted, in the capital Juba.
Nyamet spends most days lying on a mat outside a tin-roofed shack on one of Mahad camp’s muddy paths.
“I sometimes play under the mango tree, but I mainly do nothing,” said Nyamet.
Two hundred people with disabilities live in Mahad, enduring a predicament compounded by traditional stigma and official neglect.
“If she went to school, children would laugh at her and bully her. That’s why I want her to stay at home,” said Nyamet’s mother.
But, she said, “It’s difficult. I can’t even move far from the camp or go to work. I’m constantly taking care of my daughter.”
Seme Lado, of the Union of Physically Disabled, a pressure group, said Nyamet’s situation is not unusual. “Disabled people lack support and they tend to be deserted by their families. There’s a complete lack of knowledge and no one knows how to take care of them,” he said.Disability affects on average around 15 percent of people worldwide, according to the World Health Organization (WHO) — a definition that the UN agencies says is “an umbrella” term for a wide range of impairments and applies to people aged over 15.
In South Sudan, a poor, war-torn and disfunctional country, reliable figures for health are rare.
According to the disability charity Light for the World, around a quarter of a million of the 12.23 population are disabled.
The International Committee of the Red Cross (ICRC) has put forward an estimate of 50,000 amputees — a figure that has not been updated since 2012, and the war has ground on for another six years since then.
Anecdotal evidence, though, suggests the proportion of people with handicaps is far higher than the global average.
Here, the situation is worsened by preventable diseases such as polio — which was still prevalent a decade ago — or avoidable complications at birth, and by conflict-induced mental illness and injury.
“The disabled are the most marginalized,” said Sophia Mohammed of Light for the World.
In camps such as Mahad, uneven mud tracks and pit latrines turn a simple visit to the toilet into a challenge.
Nyamet now has a walking frame, thanks to Mohammed’s organization, which also builds disabled-friendly toilets — essentially latrines equipped with sidebars — in the camp, and she gets physical therapy treatment.
Also in Mahad, Omod James, 27, sits outside his tent in the scorching sun, trying to sell sweets and chewing gum from plastic jars on a small table.
He is blind and walks with crutches. The left side of his body is paralyzed.
“It has ruined my future. I’m stuck here in the camp and my mother has to take care of me,” he told AFP.
While South Sudan in 2015 passed a pro-disabled law only three percent of the national budget goes on health care (the lion’s share is spent on the armed forces), and the disabled are more often shunned than supported.
“Attitudes in society need to change,” said Kelly Thayer of the charity Humanity and Inclusion, formerly called Handicap International. “Many people are called by their disability rather than by their name. Having a disability is a massive stigma.”


Modi ally proposes social media ban for India’s teens as global debate grows

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Modi ally proposes social media ban for India’s teens as global debate grows

  • India is the world’s second-biggest smartphone market with 750 million devices and a billion Internet users
  • South Asian nation is a key growth market for social media apps and does not set a minimum age for access
NEW DELHI: An ally of Indian Prime Minister Narendra Modi has proposed a bill to ban social media for children, as the world’s biggest market for Meta and YouTube joins a global debate on the impact of social media on young people’s health and safety.
“Not only are our children becoming addicted to social media, but India is also one of the world’s largest producers of data for foreign platforms,” lawmaker L.S.K. Devarayalu said on Friday.
“Based on this data, these companies are creating advanced AI systems, effectively turning Indian users into unpaid data providers, while the ‌strategic and economic ‌benefits are reaped elsewhere,” he said.
Australia last ‌month ⁠became the ‌first country to ban social media for children under 16, blocking access in a move welcomed by many parents and child advocates but criticized by major technology companies and free-speech advocates. France’s National Assembly this week backed legislation to ban children under 15 from social media, while Britain, Denmark and Greece are studying the issue.
Facebook operator Meta, YouTube-parent Alphabet and X did ⁠not respond on Saturday to emails seeking comment on the Indian legislation. Meta has ‌said it backs laws for parental oversight but ‍that “governments considering bans should be careful ‍not to push teens toward less safe, unregulated sites.”
India’s IT ministry ‍did not respond to a request for comment.
India, the world’s second-biggest smartphone market with 750 million devices and a billion Internet users, is a key growth market for social media apps and does not set a minimum age for access.
Devarayalu’s 15-page Social Media (Age Restrictions and Online Safety) Bill, which is not public but was seen by Reuters, says ⁠no one under 16 “shall be permitted to create, maintain, or hold” a social media account and those found to have one should have them disabled.
“We are asking that the entire onus of ensuring users’ age be placed on the social media platforms,” Devarayalu said.
The government’s chief economic adviser attracted attention on Thursday by saying India should draft policies on age-based access limits to tackle “digital addiction.”
Devarayalu’s legislation is a private member’s bill — not proposed to parliament by a federal minister — but such bills often trigger debates in parliament and influence lawmaking.
He is from the ‌Telugu Desam Party, which governs the southern state Andhra Pradesh and is vital to Modi’s coalition government.